Why Wandering Is a Serious Risk for Kids With Autism, Especially in Summer 

 For many families raising a child with autism, one of the biggest fears is a child slipping away. That might mean walking out the front door, leaving the playground or disappearing into a crowd. This behavior, often called “wandering” or “elopement,” can happen in a matter of seconds. It’s more than stressful. In some cases, it can be life-threatening. 

Summer brings even more opportunities for this to happen. Routines shift, outings increase, and kids are often near water, one of the biggest safety hazards for children with autism. Understanding why wandering happens and how to prevent it can help families stay prepared and safe. 

What Is Wandering? 

Wandering happens when a child leaves a safe place without permission or supervision. This can include leaving home, school, a playground, or a caregiver in public. 

In children with autism spectrum disorder (ASD), it’s especially common. A 2012 study in Pediatrics found that nearly half of children with autism had tried to wander or run away at least once after age 4. Of those, 26% were missing long enough to cause concern. 

The reasons vary. Some children may seek out a place they enjoy, such as water. Others may run to escape overwhelming sounds, sights, or situations. But no matter the cause, the risk is high. 

Why Summer Brings Added Risk 

Wandering can happen any time of year, but summer adds new layers of risk. Families are more likely to be out of their routines, exploring new places, or visiting pools, lakes, and beaches. New environments can be exciting, disorienting, or overstimulating for kids with autism. 

Water presents the greatest danger. According to the National Autism Association, accidental drowning accounted for 71% of all deaths resulting from wandering in children with autism under age 15. 

And it can happen fast. The Centers for Disease Control and Prevention (CDC) reports that it takes as little as 20 seconds for a child to drown. 

Safety Strategies That Can Help 

Many families aren’t told about wandering risks when their child is first diagnosed. But there are proactive steps that can help reduce danger. 

Swim lessons are one of the most effective strategies. Some insurance plans may cover swim lessons for children with autism as part of behavioral treatment. Read more in Why Swimming and Water Play Benefit Kids with ASD

Families can also partner with a board certified behavior analyst (BCBA) to teach safety skills. BCBAs can support children in tolerating wearable tracking devices, reducing bolting behaviors, and recognizing safe adults or “community helpers.” 

Other tools include: 

  • Personal ID wristbands or GPS trackers 
  • Secure fencing or home alarms 
  • Creating emergency plans with neighbors 
  • Registering with local police or Smart911.com, which lets families share medical or behavioral information that pops up for 911 dispatchers 

Planning Ahead Brings Peace of Mind 

Not every child with autism wanders. But for those who do, preparation can save lives. 

Summer outings should be fun, not stressful. These 4 Steps to Swim Safety for Your Child with Autism offer practical tips families can use right away. 

For more information on wandering and autism safety planning, visit the National Autism Association’s Big Red Safety Toolkit. 

Back To School Tips for Parents of Kids with Autism

Jessica Sylfest is the parent of a child with Autism and ADHD and the Sr. Director of  Talent Acquisition for LEARN Behavioral. Jessica’s compassion, warmth, and learned wisdom are great offerings to all parents as we transition our kids back to school. There are a lot of specific strategies shared when navigating an IEP and how to establish good communication with your child’s team. As Jessica said, “I think there is such value in sharing experiences and sharing things that are going well and things that are a  struggle. You really never stop preparing. It’s just perpetual communication, planning with the school and with the other resources in our lives.”

To watch more podcast episodes visit www.allautismtalk.com

Planning Fun Summer Activities for Children with Autism

Summertime offers opportunities and challenges for all parents. For parents of children with special needs, both may seem magnified. Here are some helpful tips to consider when planning your child’s summer break:

PLAN AND DISCUSS AHEAD OF TIME
As summer begins, discuss with your child any changes and plans that might occur. Give your child multiple opportunities to ask questions and to process what their summer might be like. Find out if there are activities that he or she might like to explore. Offer examples and be prepared to discuss details of what might be expected.

CONSIDER A DAILY SCHEDULE
Schedules are often difficult to create and maintain, but having one in place can be a huge stress reducer. During the school year your child may be used to a morning routine, a predictable school schedule and consistent after school activities. The summer can undo much of that, so having a schedule in place can give some comfort and predictability. It can also allow you to program important goals, such as practicing social skills, keeping up with academics, and reducing video game and TV time. Ideally, an outside activity such as sports would be on the schedule each day. Even if a child doesn’t participate on a team, a sports or exercise activity that can be performed in the yard, at a gym, or on a play date has obvious health benefits, and increased physical activity helps reduce repetitive behaviors and improve sleep.

KEEP UP THE HOMEWORK ROUTINE
It’s okay to have less of it, but keeping a homework routine in place can be valuable, since you’ve worked hard to develop and maintain this routine throughout the school year. A more casual approach over the summer can result in setbacks when school begins again. Plus, it’s a positive and productive routine in which you can insert more social skills related content. Consider buying a workbook on social and emotional skills that can be a focus of the summer homework routine.

WORK ON SOCIAL SKILLS
This is the biggest opportunity provided by the summer break. Working on social skills goals can take many forms—as a homework assignment, as mentioned above, or expanding involvement in the community, sports, and play dates. Some parents forget that activities like swim lessons, barbecues, and vacation trips can all be valuable new settings to prompt the use of social skills. A summer job, in any form, often provides social opportunities.

TURN OFF THE VIDEO GAMES AND TELEVISION
Many of us struggle with this, since video games and television provide a much-needed break for parents, providing easy and low-cost entertainment. While it’s easier said than done, limiting these activities is critical for social development and critical thinking. We all know that sitting in front of any machine for long periods is counterproductive, so, enough said!

REMEMBER THAT IT’S YOUR SUMMER TOO
Without the routine of the school year, summer can feel like an extra burden to parents as they try to keep their children occupied and happy. Remember that summer is for everyone, so try to include activities that are interesting to you, too, and can hopefully be enjoyed by the whole family. The beach, an outdoor festival or concert, a hike or sculpture garden— whatever you plan, it’s okay to create a few summer memories of your own.

Watch our Parent Video: Summer Activities for Kids with Autism in Your Community

Here are some additional resources to help make your season great for the whole family: